Articulate Ventures

Rachel Nau; Williams Syndrome - a condition that heightens sound, trust and emotional perception

November 27, 2020 · The Vance Crowe Podcast

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About this episode

A deeply personal, unusually slow-paced episode: Vance interviews Rachel Nau, the younger sister of his oldest friend, about living with Williams syndrome — a rare (1-in-20,000-to-30,000) chromosome-7 microdeletion condition. Rachel describes heightened auditory sensitivity (hearing an approaching thunderstorm before anyone else could), a deep affinity for "sparkly things" shared broadly among people with the condition, and a clinically-recognized trait called "over-friendliness" that comes with genuine risk (difficulty distinguishing safe from unsafe strangers). She recounts being bullied and socially excluded in high school despite that innate warmth, being rescued socially by her older brother's friend group, and the profound emotional experience of meeting another Williams-syndrome person (Kimmy) for the first time after years of feeling alone in her difference. The conversation moves into her sequential, one-task-at-a-time learning style (illustrated through ten years working retail at a thrift store), her inability to drive and resulting dependence on others for transportation, and an extended, emotionally resonant discussion of her Christian faith — including vivid, lengthy "spiritual dreams" she transcribes by hand each morning — and her ability to sense others' emotional states without words. Vance repeatedly draws parallels to his own empathic sensitivity, calling it one of the most personally connecting interviews he's done. Rachel closes by asking listeners to see people with special needs as full human beings first, not defined by diagnosis.

“What they identify medically is called over friendliness... you just want to be friends with everyone, just want love all people... but it has its unknown parts. Meaning that I don't always [know] if there's someone unsafe or not.”
“I am extremely sensitive to the point where I can feel someone's emotion without them having to say a word or read their body language... I can feel it in my heart.”
“Sometimes I have spiritual dreams so I can see different things happening that relate to God... These [pages] are not just one page, they're like 10 to 12 pages sometimes... it takes me like two hours to write it down.”

Key moments

Notable quotes

“There was my mom with Kimmy... we both started to cry, we hugged right away and it was amazing.”
“I would wake my parents up in the middle of the night saying that there was a storm coming and the sky wouldn't be dark or anything... 30 minutes later there was a storm.”
“I can feel my boss's stress... it's not even actions or words that she's showing. It's just I can feel it in my heart.”
“They need to be treated with love, respect... they are normal because God created them that way.”

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